I have bad bones. I suspect that I was born with DNA that has led me to the disturbing reality of having osteoporosis. Three of my aunts had it. My paternal grandmother had it and some of my female cousins are afflicted as well. A doctor first diagnosed me when I was in my forties, but I suspected that such was the case far sooner. I watched my mother’s three sisters becoming increasingly crippled by the disease and I noticed similarities between me and them. Hearing the words from my doctor was devastating.
I was once one of the tall girls in high school at five feet six and one half inches. I took pride in having a long waist and strong legs. I did not even notice that I was shrinking until my clothes began to fit differently. The first time a technician measured me as part of a bone scan I broke down into tears when she told me that I was only five feet four inches tall. I asked her to check her measurements again but the results were the same. I was not surprised at all when the scan showed that I had osteoporosis.
I initially panicked and went into a funk. I am an energetic person to the max. I like to hike in the mountains and work all day without stopping. Knowing that my three aunts all ended up in wheelchairs inside nursing homes made me shudder. I began to imagine a greatly constricted life that was so contrary to the way that I like to be. I eagerly embraced exercises and medications designed to keep me walking as long as possible. I endured a two year experience of injecting myself with Forteo every single day for hoping to build new bone in my skeletal structure. Luckily I did not have any of the side effects that lead to having to stop the process.
The Forteo did in fact work for me. For the first time in years I was no longer classified as having osteoporosis. I was ecstatic but only a year later I had lost much of the progress that the drug had made. Once again I became incredibly defeated. I felt the clock ticking until the time when I would no longer be able to perform all of the tasks that I so loved doing. I sobbed like a baby in the presence of my doctor who assured me that times were changing and new research was providing answers and therapies to keep those with my disease upright and moving around. He put me on a regimen of Prolia injections twice a year. I visit an infusion center to get the medication and so far it has stalled the progression of bone loss in my skeletal structure. This has been a big win for me.
I suppose that I began to take it for granted that I am going to be okay and that I can do anything that I want to do. I ignored suggestions from my family that I should not be climbing in and out of my attic to procure decorations for holidays. I ignored pleas that I no longer climb ladders. I have been determined to stay strong and keep demonstrating my high energy demands even as I began to notice that my aches and pains were increasing. I learned to ignore the twinges in my hips and knees and shoulders that urged me to rest a bit more. There are always so many chores to do, so much to accomplish. I carried on with a dose or two of Advil. I was not going to let osteoporosis win the battle for my freedom to move around.
Then it happened. I was decorating for Christmas and I banged my ankle into the hard edge of a table. An hour or so later I was unable to put any weight on my foot. For the first time in my entire life I had to visit an emergency room. I felt stupid and uncomfortable there. I kept telling the nurses and doctors that I am a strong person who knows how to ignore pain. I did not want to be treated like an elderly invalid. I needed to get better and get back to work. Only that is not what has happened.
Nothing was broken but I was quite banged up. My entire foot and much of my lower leg was so bruised that it looked as though someone had beaten me with a baseball bat. I was only able to walk if I wrapped the foot in an ace bandage and wore an orthopedic boot. I spent a day in bed with my foot elevated. I kept an ice bag nearby to limit the swelling. Things seemed to be doing well so with the aid of the boot and some Advil I went back to all the activities associated with my teaching and my preparations for Christmas. I even spent a day shopping for gifts. By the end of the week I was in intense pain and unable to walk comfortably so it was back to a day in bed again.
My anxiety and depression returned as I read posts from friends who were baking cookies and preparing for Christmas with same kind of abandon that I always put into the effort. My daughter sent my grandson to help me and then suggested that I scale back my Christmas dinner this year. I began to imagine myself sitting alone in a wheelchair inside a nursing home once again. I held a bonafide pity party for myself as I wondered what I was going to do if I was no longer able to climb the stairs in my home. My father-in-law now resides in the downstairs master bedroom and I worried that I would have to sleep on on couch if I became limited in my mobility. I lay awake for several nights overthinking the entire situation when all I actually had to do is admit that it was okay to slow down and not be so intent on aiming for perfection in all that I do.
I am still walking with my boot. I don’t know how long I will have to wear it but I do know that I have to be circumspect in how much I do each day until my injury is adequately healed. Dust is settling on my furniture and my home no longer looks like something out of a magazine. I am trying not to think too far ahead because none of us can know exactly what the future holds for us. Learning to just enjoy the moment without all the frills is a new challenge for me. Letting others help me instead of always being the helper is an uncomfortable role that I am doing my best to learn how to do. Accepting my current limitations and finding joy in what seems like chaos to me is my new goal. This old perfectionist is learning new tricks. Maybe it won’t be so bad but my learning curve is going to be quite steep.