Category: Art

Unrest

Published on by Sharron BurnettLeave a comment

omar-jen-wheelchair-woodsShe is incredibly bright and beautiful, a graduate of Harvard who was about to complete her doctorate at Princeton. She was in love with a brilliant man and the two of them travelled the world together. They made plans to marry, have a family, build their stunning careers together, and then she caught the flu. It was a particularly harsh case with fevers of one hundred four degrees. When she was well once again she felt debilitated, but thought little of the residual effects. She had after all been very ill. She told herself that it would simply take time to regain her energy, but something was very wrong because instead of growing stronger she began to feel more and more weak. There were even times when her mind did not seem to work properly. She was unable to find the proper words to express herself. It was all so frightening.

Eventually her symptoms became so concerning that she sought the expertise of a medical doctor. He insinuated that it was all in her head, diagnosing her with what used to be known as hysteria. He suggested that she was reacting to some deep seated trauma that she most likely was unable to remember. He sent her home with no real explanation for what was happening, and she began to wonder if she was indeed going crazy. That’s when she got an idea.

The next time her symptoms became so severe that she literally collapsed in pain, unable to move or express herself, she asked her husband to film the incident. She took the video to a neurologist who was stunned by what he saw. He eventually told her that she had ME. Myalgic Encephalomyelitis, a strange disease that is thought to afflict ten to fifteen million people worldwide. There is no definitive test for the illness and no cure. The diagnosis is made based on symptoms alone which include excessive fatigue after mental or physical activity, intolerance to exercise, joint and/or muscle pain, memory problems, difficulty walking, sore throats, headaches, flu-like symptoms, sleep disturbance, bowel problems and mood swings.

The disease is also known as chronic fatigue syndrome and affects those who have it along a spectrum from individuals who endure a mild attack and then recover fully, to those who become completely homebound and bed ridden. There is no known cause but the disease appears to follow otherwise fairly typical and minor illnesses like the flu. Some believe that the roots of the problems lie in hormonal or allergy issues, but none of the research has proven any of the theories. It is a greatly misunderstood disease that sometimes results in psychiatric diagnoses rather than physical ones.

The woman whose life was so impacted by ME is Jennifer Brea, and she has a debilitating case of the disease that has radically altered the trajectory of her life. In a fashion keeping with her personality she decided to film her journey along with that of four other victims so that she might shed light on a mostly misunderstood illness. In conjunction with Sundance Films she created the documentary. Unrest, that chronicles her experiences as well those of the four others whose lives have been so radically changed after contracting ME. The film debuted on the PBS program Independent Lens this January and its power to visually explain what happens to those who have ME is emotionally visceral.

Jennifer Brea holds back nothing in her depiction of what ME has done to her and the relationship that she shares with her husband. She honestly expresses the fears and disappointments that plague her as much as the symptoms. She presents a compelling argument for more research by noting that those who are stricken often become like missing persons as they are forced to be hostages to their illness. She tells a compelling story of families broken apart and individuals losing their identities all while the rest of the world remains mostly ignorant of the horrors of this strange condition.

Her own story is one of the love that she and her husband share in spite of the problems that have so changed the way that they once thought they might live. She wants to be able to give him the kind of relationship that she had thought they would have, but instead is continually thwarted by recurrences of the most trying symptoms. Her husband has nobly stood by her, but even his patience is often tried by the confusing nature of his wife’s illness.

Ms. Brea shows a family in Sweden whose child was institutionalized in a psychiatric facility because doctors there were unwilling to accept a diagnosis of ME for her. Brea also introduces us to a woman who had been a happy wife and mother, one who had no idea that she would eventually be confined to bed with her own husband believing that she was just insane rather than physically ill. Her marriage deteriorated and she struggled to survive. When one of her daughters came down with the same disease her world unraveled even more.

The film is so personal, so real that those of us viewing the stories become involved with the characters, particularly Jennifer Brea herself. We watch her gaining strength and find ourselves hoping as much as she and her husband do that she will somehow miraculously improve. We cry with empathy as we become all too familiar with the struggles associated with ME.

Unrest is a touching and important documentary and quite worthy of the accolades that it has received. Hopefully it will also become the impetus for more research into the mysterious illness that it depicts with so much unflinching insight and compassion. At the present time very little is being done to learn how and why this illness affects certain people. There is only a smattering of interest in finding something that will cure those afflicted with its devastating symptoms. It is a grand mystery that shows no signs of being solved while real people suffer from the misunderstandings and lack of knowledge surrounding it. Hopefully Jennifer Brea has opened a door of awareness that will ultimately lead to the studies that will eradicate it or at least lead to more hopeful treatments. Perhaps just by spreading information about ME Unrest will at the very least bring more compassion to those who deal with its tragic effects.

The Builder

Published on by Sharron Burnett1 Comment

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There was a hardware store near our home that my father visited each Saturday with an almost religious fervor. It was a sacred place in which I ultimately felt the full extent of my father’s happiness. Happily he regularly took me on his weekly excursions and I always felt special as we wandered together through the aisles of tools and gadgets and fasteners while my dad explained the purposes of the different items. He was in his element inside that store and his face willingly gave away the happiness that being there provided him. Whenever I think of him I recall the bins of nails of every size and remember his lessons on why there were so many different kinds. I can still see him carefully weighing the proper variety for his latest project on the metal scales that hung from chains connected to the ceiling. I can smell the aromas of oil, wood, and metal that permiatted the concrete floors and the wooden studs of the walls. This was a cathedral dedicated to the carpenters, plumbers and electricians of this world. In Daddy’s case it was a shrine for all who love to build the edifices and implements that we use to bring us comfort.

My father never treated me as though I was too young to understand what he was doing. It didn’t seem to occur to him that as a girl I might not have been interested in the things that he so loved. He spoke to me about his passion for construction and explained the hows and whys of his work. Thus it was that he allowed me to sit at his side as he created a miniature replica of our first home. He carefully drafted a blueprint and showed me how to shrink the proportions of the rooms into a drawing that fit on a single sheet of paper. I could not have been more than four years old when he demonstrated the techniques of scale to me, for I had not yet started school when he first told me of his idea. Somehow Daddy assumed that I possessed enough intellect to understand his calculations in spite of my youthfulness, and he was so right. I was mesmerized by the process and willing to sit quietly on a stool while he demonstrated his skill at his drafting table.

The next phase of his work was to build a tiny house that would resemble our home in every imaginable detail. I was fascinated as he measured and cut pieces of balsa wood to create a frame for the structure. Even before he had inserted the walls and other features I was able to see the rooms unfolding just as I knew them to be. It took many weeks and many visits to the hardware store to finish the lovely reproduction. Sometimes weeks would pass before he had time to return to the task of making the tiny house that almost appeared to be the work of fairies rather than a man. I was astounded when it was finally complete because the details were so exact. He had somehow managed to create an illusion of cedar shakes and bricks and shingles that was a perfect copy of the house where we lived. He had designed the roof so that it could be lifted to reveal the interior rooms with their gleaming wooden floors and brightly painted walls. It was a masterpiece in my eyes and I felt a quiet joy in having observed the entire process. Sadly I have no idea what eventually happened to that wonderful creation. I would give anything just to see it once again and to explain to my children and grandchildren how wonderful it was to have been a witness to my father’s painstaking work.

My daddy was just as likely to educate me regarding other things that he built as well. When I was about seven we had moved to a new home and he was annoyed that we had to walk on the grass to get to the front door from the driveway. He muttered that the builder should have thought to create a sidewalk leading to the entrance. Before long he had decided to rectify the omission himself and once again he used the project as an opportunity to teach me about the proper methods for installing a concrete pathway.

He began by carefully digging out the grass in a pattern that resembled the desired design of what would be the final product. After seeming to take forever to level the ground and straighten the lines he next built a form with wood and and string, taking care to survey his measurements accurately. He allowed the structure to cure for a time to be certain that the ground was not going to shift. He also watched the drainage pattern and made adjustments to insure that there were not low points that would hold water. Then he began filling the bottom of the wooden platform with metal rebar and even bits of nails and other metal shavings left from other things that he had built. He told me that the metal was the secret ingredient for insuring that the sidewalk would last for years without cracks or erosion. Finally came the day when he mixed and poured the concrete spreading it until it was smooth and as perfect as he insisted that it should be.

Nobody was allowed to walk on his creation for days until he was certain that it was set exactly as he had hoped. He was quite proud of the outcome and so was I. Our neighbors commented on how nice it was and joked that they were going to hire him to build one for their houses as well. Daddy boasted that it was a fine structure that would last for a very long time. In fact it has endured even longer than he did. I recently drove past our old home and saw that the sidewalk was as strong as ever. It was not leaning nor did it have any cracks. It had withstood decades of use, sixty two years to be exact. As I saw how well it had performed I swelled with pride in knowing that my father had built it with his ingenuity and engineering skills. More importantly he had believed enough in me to share his knowledge with me, something that made me feel capable and appreciated.

To this very day I find great pleasure in sauntering through hardware stores. I especially enjoy the ones that are more in line with those of old. I prefer the bins of nails and bolts over the plastic packages that are the modern day norm. I consider an outing to Harbor Freight or Ace Hardware with my husband to be a delightful activity. Repairing things or building something is as much fun for me as taking a vacation trip.

I suppose that a psychologist would attribute my love of constructing to the tragic loss of my father when I was only eight years old. My childhood memories of him revolve around books and building and Texas A&M University football. I only truly know him through the brief amount of time that we shared, and yet it was so revealing of who he was that recalling the feelings that I felt provides me with comfort. He demonstrated his love for me by teaching me about the things that mattered so much to him. He was a great father if only for a very short time. 

While I will never truly understand some of the mysteries surrounding Daddy’s death nor the void that he left when he was gone, I treasure the recollections that he left me. The emotions that I associate with the simple act of wandering through a hardware store are visceral and as real as if he were standing next to me with his boyish grin of anticipation about the next thing that he was going to build. When I remember I am filled with pleasure and a sense of security because I know for certain how much he loved me, and for that I will always be grateful. He was a builder not just of things, but of beautiful relationships and dreams. 

Finding Inspiration

Published on by Sharron BurnettLeave a comment

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I  was having a difficult time finding inspiration for writing my blog today. I’ve been enjoying doing this task five days a week for almost five years now, and there really are very few days when I search desperately for a topic. When that happens I usually serf the Internet hoping to find something that sends a sudden burst of ideas to my brain. Today was one of those times when nothing was coming to mind, so I spent some time reading posts on my Facebook wall hoping desperately that something would jump from the page to tickle my fancy.

I read about a friend who had run a half marathon and ended up exhausted and hurting. I was intrigued by what she had done, but since it would never even cross my mind to think of doing such a thing I didn’t exactly come up with fertile ideas for writing when I read about her adventure. How far would I get reiterating the idea that my knees no longer allow me to run, and that I have little or no desire to push myself into a state of pain doing anything. It became obvious to me that I would have to keep reading if I was to find any kind of material for creating an essay. That’s when I saw  a post from a high school friend that sent me into gales of laughter.

He was asking if anyone had an extra set of feet for an artificial Christmas tree because he was unable to locate his. He had searched closets and attics and all sort of places all to no avail. Friends in his age group razzed him about getting old and the inevitability of becoming forgetful. I identified completely because I had decided on a great blog topic only an hour or so before, but couldn’t recall what it had been for the life of me. Lately I’ve had to learn to write things down as soon as they come to mind or the slightest interruption may erase them forever. My husband had asked me a question and in the short space of time that it took me to respond I literally forgot what I had intended to write about for today. So there I was wondering what to put on a page.

That’s when I saw yet another post from a former teacher friend who was asking for advice on what to do to find inspiration when it eludes us. There were some great ideas like gazing up at the sky, but it was very dark and rainy where I was, so that didn’t seem to be an option. I’d already tried looking for interesting quotes and perusing the news, none of which jostled even an iota of creativity. That’s when I thought of the many times when I had a deadline for an essay, and I drew a blank regarding what to compose.

Writer’s block is the stuff of legend. After creating the masterpiece The Great Gatsby, F. Scott Fitzgerald struggled to regain his footing. Somehow he was not able to repeat his performance as a writer and it lead to depression and alcoholism, so I know I shouldn’t feel too bad if I find myself without ideas now and again. Still it is so frustrating, and I remember one occasion in particular when I stared at a page with the same painful realization that I was as stumped as Jack in The Shining. I didn’t even have the wherewithal to write the same sentence over and over again. I was unable to even string together a nonsensical group of words, and it threw me into a panic because I was taking a class at the time, and my assignment was due the following day.

I was willing to admit that procrastination had created my dilemma, but that was little comfort as the clock ticked away. It seemed that the harder I tried, the more locked up my brain seemed to be. Taking a walk did little to help. Lying down and attempting to quiet my mind did not work. Screaming my frustration only felt worse, because I knew that I must have sounded ridiculous. I was on the verge of panic and tears when my husband brought me a cold beer.

I looked at him as though he had two heads. I argued that drinking a brew might only make me sleepy and then I would really be in a pickle. I thought of poor Fitzgerald and how not even a prolonged bender alleviated his problems. I failed to see how pausing for a sip of suds was going to change the situation, but I had almost reached a breaking point, so I surrendered to the idea.

I relaxed a bit while enjoying the amber liquid, and as I did I became quite mellow, so much so that I wondered if I would just drift off into slumber and end up having to attend class without completing the assignment. I was certain that I was totally in trouble, when I slowly found myself considering a number of out of the box ideas. The more gulps I took of the beer, the more fertile my thoughts became, and before long I was banging out a paper that in that moment made me feel as though I was writing the next great educational document. My fingers were barely able to keep up with the flood of ideas that filled the once blank paper with a sea of characters forming words, sentences, paragraphs and entire pages. Not more than an hour later I was proof reading my manuscript and creating the final copy for submission.

I went to bed that night feeling relaxed and accomplished. My alcohol soothed brain was bristling with greatness, or at least it felt that way. Sadly by morning I wasn’t as sure of myself, but I had to work all day and understood that I was stuck with the essay that I had written with a muddled mind and no time to change it in any way. Rather than torture myself I decided not to even read it again, and I began to feel a dark sense of foreboding. Somehow I believed that any chance of getting a decent grade was doomed. I chastised myself for allowing such a situation to exist in the first place, but it was too late.

As it happened, I had somehow unlocked the creative juices of my brain with my drinking binge and my paper proved to be more than satisfactory. When I saw the grade I was amused that I had pulled off my smoke and mirrors magic trick. The professor wrote dazzling comments about my brilliance, but I could only laugh at the fact that I was unable to remember what I had written. (Bear in mind that it takes very little for me to become the victim of a drunken state, so that beer had rendered me rather incoherent, but apparently still somehow in control of my faculties. I now fully understood why so many writers turn to drink as a muse.)

My latest episode of writer’s block and the search for inspiration lead me into a discussion of over imbibing with a group of relatives. My brother who is almost a tee totaler spoke of a time when he enjoyed himself a bit too much and engaged in a match of chess with a graduate of MIT after running a foot race with his buddies. Surprisingly he recalls the incident as the best game that he has ever played, and he was so relaxed that he won handily in both the race and the chess game. Others told of amazing feats like being able to do pushups on a countertop, or dancing like Fred Astaire. It seems that rather than inspiration, what we all found was a way to eliminate our inhibitions.

I certainly would never recommend my inebriated writing method as a regular means of expressing my thoughts. It might have ended quite badly, but for a bit of luck. I suspect that the secret was that I was able to relax, and I might have accomplished the same thing with a brisk walk or a few minutes of meditation. It may well have been my brother’s exercise before the chess match that was the source of his winning ways, and not the vodka. It didn’t seem to work for F. Scott Fitzgerald, so it may be a mistake to think that it worked for us.

Anyway, I’ve somehow managed to fill a blog with a bit of nostalgia and nonsense and maybe even some hidden ideas for finding inspiration. In the future, however it is no doubt best to write down the ideas that I have before I lose those thoughts. It is a lot less frustrating than tackling an empty page.

Satisfaction

Published on by Sharron BurnettLeave a comment

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Last year my high school Class of 1966 had its fiftieth reunion. It was fun seeing people who had dropped out of my life for so long. Since then I’ve tried to stay in touch with many of them via Facebook and the occasional lunches and such that our class leaders schedule. I’ve attended a few funerals as well where I have encountered the most faithful among us. Mostly those sad occasions have been for the parents of my school pals, but now and again we gather for one of our own. I have written blogs about many of those people in an effort to honor their memories and to thank them for the impact they had on my life. It’s particularly sad to see peers losing battles with disease. It is a reminder that all of us are headed in one direction, so we need to be certain that we are getting the most out of life while we have the opportunity.

Last week we received notification that yet another among us is now gone. Harry Butler did not attend our reunion which was rather in keeping with his general personality, but I often thought of him even though I never saw him again after our graduation day. Harry was in the same honors class in which I was. Since the school chose to send us from class to class as a group we were rather constant companions for four years, but I still didn’t know him as well as some of the others. Nonetheless I was fascinated with Harry because he was one of those individuals who insisted on marching to his own drumbeat. There was always something quite interesting about him. I always believed that he would have an exciting life.

It did not take long for all of us to realize that Harry was a gifted writer with an imagination and wit that was intriguing. As someone who longed to be a journalist or a story teller I watched Harry with great interest because I believed that I would learn much from him. It became sadly apparent to me that I would never be able to equal his talent. He had a way with words that set him apart from those of us who labored away at composing. He was an artist who painted stunning pictures with his sentences and paragraphs. He was able to make us all howl with uncontrollable laughter with his essays and newspaper articles. When he created much of the script for our annual Junior/Senior banquet one year the whole class saw how remarkable he truly was.

Harry went to St. Thomas University in Houston, Texas after graduation form high school and majored in English. I lost track of him except through friends who would encounter him from time to time. I learned that he eventually went to Los Angeles to try his hand at screenwriting. I heard rumors that he had actually done well out there and I often found myself scanning film and television credits to see if his name popped up. I really did expect to see him at an awards ceremony one day because I felt that he was that good at his craft. Of course I never saw such a thing but I never really forgot about him. When I traveled to that part of the country I found myself wondering where he lived and how he was doing. I tried to imagine whether or not he had worked with famous people and what scripts he may have created.

I learned from his obituary that he had been sick since January of this year. He had developed an infection of unknown origin that caused an embolism in his brain. This is how he died and it made me so very sad because he possessed a truly remarkable brain. I hoped and prayed that his final days and weeks had not been too painful and that he had been able to read the books that he always enjoyed and listen to the music that enchanted him.

Harry’s father had been a record distributor when we were in high school. Because of that Harry always seemed to have advance knowledge of what new music would be coming our way. He enjoyed regaling us with his insider information and I delighted in being privy to it.. Harry was a character in every sense of the word and his musical insights only added to an air of mystery that always seemed to surround him.

Harry was an exceptional debater, another talent of which I was a tiny bit jealous because Lord knows that I tried so very hard to master that skill. No matter how hard I worked at it I was unable to come close to being as exceptional as he was. Harry was quite simply one of those people who thought on his feet and was able to come up with just the right retorts at just the right moments. He and his debate partner and friend had quite a run as superstars. I often thought that he might become a lawyer but I suspect that such a career was just a bit too tame for him. Harry was out of the ordinary and we all seemed to sense that.

I learned that Harry spent his work life in Los Angeles but returned to Texas after he retired. He chose to settle in Galveston where he loved reading and listening to music. He brought a former ballerina with them and the two of them enjoyed a quiet life near the sea. Even in his final days Harry managed to seem a bit exotic and to have done things on his own terms.

It’s amazing how we never quite forget the people with whom we spend our teenage years. I regret that I never really got to know Harry just a bit better or to tell him how much I admired him. I suspect that I was too much in awe of his remarkable talent in areas in which I so wanted to succeed in my own right. It was as though I saw myself as little more than a hack whenever I compared my abilities with his. Eventually I found the confidence that I had lacked back then and realized that Harry and I had very different styles. I became content to have watched him from afar and to know that maybe just maybe he had found some magic out in Hollywood. At least I certainly hope that is true. I’d like to believe that he lived the kind of life of which he had dreamed so long ago.

Harry’s death signals the passing of another extraordinary member of our class. I feel confident that he is now resting in peace with the angels and cracking them up with his razor sharp sense of humor just as he shared his gift with us so long ago. I remember a time when he proclaimed that the Rolling Stones were the best rock group ever. I argued with him at the time and lost of course, but I always thought of him over the years as that group became my favorite as well. Upon hearing of his death I heard the strains of Satisfaction in my brain and thought of his grin and sarcastic humor that always made us laugh. Thank you, Harry, for some really good times.

The Leftovers

Published on by Sharron BurnettLeave a comment

leftoverheader3We humans are so incredibly complex. Even those of us who grow up in the exact same household with the same parents will be unique, just a bit unlike one another. We see beauty in different ways and are attracted to works of art according to our own preferences. We demonstrate our emotions in a multitude of ways, and when tragedy strikes there is no one manner in which every single one of us will react.

An amazing television production completed its final season a few weeks ago. The Leftovers was an offering of HBO that never quite caught the attention of a wide ranging audience, but it became a cult favorite of enough individuals to keep it alive for a year longer than HBO management intended. I am among those who believed from the very beginning that I was watching a masterpiece of theater unfold before my very eyes and I was rarely disappointed.

The Leftovers takes us to a situation in which people suddenly and quite randomly disappear on an otherwise normal October day. There is no rhyme or reason that explains who was selected or why certain people were left behind. Some families were not affected at all and others were decimated. It was a mysterious tragedy that left most of the world bereft and focused on dealing with the emotions that might accompany such a strange happening.

The story that unfolds introduces us to a cast of characters from Mapleton, New York who are dealing with the trauma each in his or her own way. The power of the program lies in the unveiling of the individual emotions of those people, and the actors portray them with a craft that is worthy of every possible award. They bring a humanity and believability to the stories even when they become far fetched indeed.

I don’t believe that anybody ever intended the audience to see the sequence of events in The Leftovers as anything other than allegories and metaphors for life. The plot unfolds in a kind of dreamlike sequence that strains credibility if one demands rational explanations. Instead it should be viewed much as one considers an abstract painting in which reality takes many forms. The best way to watch The Leftovers is as a tour de force of imagery and acting that is superior to most of the simple minded fodder on television.

In its three seasons the story moves from New York to Texas to Australia. I happened to be camping in McKinney Falls State Park in Austin when some of the Texas sequences were being filmed there. It was fun to see the images of places so familiar to me. My granddaughter was called for a role in the program that summer, but when they learned that she was not yet twelve they had to turn her away because the work would have been too dangerous for a younger child. I suspect that it might also have been a bit traumatic as well because The Leftovers is a show that is never fearful of taking emotional climaxes to the very limit.

This series is not for the faint of heart. It ruthlessly studies our humanity and the ways in which we choose to deal with tragedy or attempt to ignore it. Ultimately it becomes a story about love. It looks at questions of faith and portrays true believers as well as agnostics. It does not attempt to provide the audience with any kind of answers, but instead tempts us to think about such things and wonder how we might react if we were to endure a similar situation. I keeps the mysteries of our existence in the realm of unanswered questions, leaving us to decide for ourselves what everything that we see actually means.

I have discussed this series with a number of people who were discouraged from watching by the ephemeral feel of the story. I suppose that they require a bit more closure and reality than I do. I find myself agreeing with Bob Dylan, the most recent winner of the Nobel Prize for Literature, that if the words and ideas of an artistic endeavor somehow sound good to us, we will imprint our own meanings on them. For me The Leftovers is a journey into a kind of hell much like Dante’s Inferno. It shows the dark places that we take ourselves as we search for meaning in an often cruel and confusing world. It provides us with a small taste of optimism as well in demonstrating that it is in the relationships that we somehow manage to build even when the worst happens that we ultimately find our salvation.

Everything about The Leftovers is so carefully considered for its impact. The music is as important as the script. The images are often like great paintings from the most masterful of artists. The acting is so real and intense that it often leaves those of us in the audience breathless. It is like watching a moving definition of beauty and truth.

I am sometimes reluctant to recommend The Leftovers to anyone because it is the essence of a figurative world where every aspect of the show means something and those meanings can be very different for each person. If you tend toward the literal this program probably won’t work for you, but if you are willing to suspend reality for the sake of pure art then you may be in for a treat.

For those of us who are huge fans of this program it is sad to realize that it is no more, but it is also true that elongating the story for the sake of keeping it going would undoubtedly detract from its ultimate beauty. The Leftovers is a masterpiece that will be studied by writers, actors and directors for years to come. I’m glad that I was part of the audience that understood its genius from the very beginning. I will miss Kevin and Nora and Matt and the others, but I am thankful that they came into my life for three years and provided me with a glimpse of brilliance.