Category: Illness

Staying Apart To Come Together

Published on by Sharron BurnettLeave a comment

social-distancing

I am admittedly impatient. My personality is such that I prefer taking control of situations. I don’t like to like to wait around to see what is going to happen. I want to make a difference right now, do something to make things better not just for me but for others. When things take too long I become indignant and do everything possible to fix them immediately. Suddenly I’m caught up in a worldwide flood of uncertainty along with millions of my fellow humans while a tiny virus, invisible to the naked eye, is wreaking havoc and spreading fear. I’m watching life as we have all known it being put on hold. I am forced to reach deep inside of my psyche to find patience that I don’t always have.  Already the waiting challenges my normal need of control. Enforced social distancing leaves me to my thoughts which are racing in their usual breakneck pattern that tends to occur with or without a worldwide emergency. 

I am an empath, someone who literally feels others’ pain. I worry incessantly about how events will affect the people that I love. In all honesty I’ve had a very good run of seventy one years on this earth and if I were to contract the coronavirus and leave for heaven I’d want everyone to celebrate the wonder of my life and not waste tears. It’s the young folk and the future that concern me and I understand how tough and confusing this must feel to them, and even a bit unfair. I know all too well that you don’t always get what you want and that a bit of adversity toughens the spirit. I’ve been there done that more times than I care to remember and I’ve survived quite nicely, but I would not wish what is happening on any of our youth. Nor would I ever want them to know the bitter disappointments that have impacted my own life even though it is certain that they will have their own trials.

My seasonal allergies are causing my nose to run and my throat to hurt. I have no fever but I wonder if that weight on my chest is only evidence of the anxieties that have arisen in my mind or a sign that I’ve somehow contracted the virus. I know that I am overthinking this situation, but it is the way my mind operates. I am a teacher. I am trained to plan ahead, to see a thousand different things happening all at once, to know what my students are feeling, to be able to shift gears in a nanosecond, to be ever alert and protective, to take charge when danger lurks. I’ve already turned a room in my home into a virtual classroom. I will continue to work with my grandchildren and the little group of home-schooled children to whom I teach mathematics. I will keep calm and carry on, but I think about the impact that all of this will have on the youngest among us and I know that we will have to remember them and comfort them.

There are all of those youngsters who have spent months raising livestock to show at the Houston rodeo. I have two grandchildren who do such things. I know that they arise before dawn so that they will have time to feed and care for their animals before going to school. In the evening when they are tired and have mountains homework to do they must return to the barn again to repeat the process. They shortened summer vacations and Christmas visits with relatives because the animals depended on them. They spent a fortune in feed and veterinarian bills. The experience taught them to be dependable and no price can be placed on that, but the culmination of their hard work is to show their goats and pigs and steers and get recognition and money for their efforts that they set aside into their savings accounts for college or to purchase the next animal. What will happen now?

Hopefully there will be kind souls who make things right for them, but what about the other teens who have worked hard on projects about which most people are unaware?I’m talking about someone like my grandson who has been running since he was a little tyke in elementary school who earned the record for speed in his physical education class. Now he is a junior in high school at the peak of his skill. He runs all year long, even in the heat of summer to be ready to demonstrate his prowess in the spring track season. This is his junior year. If he is to catch the notice of a university that might be willing to offer him a scholarship it needs to happen now, but there may be no now for him. He’s been consistently winning in the few competitions that have already been held but what will happen to the rest of the season?

There is my granddaughter whose Vet Tech team was almost certainly headed to the state competition. They have worked incredibly hard and getting to the finals is more than just an honor. It is a way of getting FFA scholarships which require winners to have made it to at least one state run off. She worries that the opportunity for which she and her teammates have been working may never come.

Then there is another grandson who has been staying at school until well after nine at night to practice with the indoor percussion group of his band. They were slated to perform at a national competition in Ohio and the odds were rather good that they would earn a prize. Now that trip and future performances have been canceled and their efforts are in limbo.

Two other grandsons were supposed to receive their Aggie rings from Texas A&M University on April 18. This is a grand tradition celebrating thousands of hours of studying and learning. Now the rest of the semester on campus has been suspended. All classes will resume online. They must return home to uncertainty and a way of learning that doesn’t always work well for everyone.

So it is for our young all across the nation. Stories like those of my grandchildren’s are being repeated again and again. Not just disappointment but missed opportunities are suddenly the rule when only a week or so ago their plans seemed so exciting. While these sacrifices are nothing compared to the tragedy of those who are sick and dying, we should not minimize the impact that this will have on their futures.

To make matters worse we know that an even more pressing question concerns what will happen to the millions of working people who cannot earn a living from the solitude of their homes. What will happen to the hairdressers if the clients fail to come? How will the service industry stay afloat while social distancing becomes the norm? What will happen in my city, the energy capital of the nation, if the price of oil continues to tank? When will those 401ks stop bleeding form loss? Will the Teachers’ Retirement System be able to weather the disruption? Will the economy collapse in our effort to save lives? It’s suddenly a whole new world, a mind boggling reality unlike anything we have experienced, but it would be familiar to our grandparents. We need to remember their stories and the ways that they approached life. There is wisdom in the way they lived.

I have every confidence in myself, in the young and in the people of the world. We are a resilient lot and we will endure and overcome the challenges wrought by our current state of affairs, but I do not fool myself into believing that it will be easy. We are in for some difficult times and each and everyone of us will need to be ready to help and to rethink the way we have always done things.

I’ve already witnessed some promising ideas. There are school districts that plan to offer food service pickup to the families of students who need it along with online classes. There are good people who are already offering to purchase the livestock from those kids who were literally caught off guard by the cancellation of the rodeo. Teachers are revamping their lessons. Companies are finding alternative ways of doing business. Schedules are being redone. I even heard of a way to help our local business owners by purchasing gift certificates from them online to be used when this disruption has finally blown over. The important thing is to remember to check on your neighbors, call your friends, find out what members of your family may need. Be patient. Be kind. We are in for a bumpy ride and impatient souls like me will have to learn how to wait but with efforts by most everyone I believe we will ultimately be fine. As someone has said this experiment in social distancing may be the very thing that we need to come together.

We Can Do It!

Published on by Sharron BurnettLeave a comment

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So here we are in early March, a time for the Houston Rodeo, Spring Break, March Madness, St. Patrick’s Day celebrations. Our nature is to enjoy the promise of this time of year when the flowers begin to bloom again, at least in my part of the world. We are creatures of habit and regardless of how much we protest any insinuation that we are not flexible, we feel the earth move a bit under our feet when things don’t go as planned.

We are a generally lucky lot here in the United States of America, at least those of us who are members of the middle class. We plan trips and decorate for Easter and watch sporting events on our big screen televisions. Worries come now and again but we generally work through them. Sometimes Mother Nature brings destruction to our front doors like it did when hurricane Harvey hit Houston, but we take pride in taking control of such situations and putting things back to normal as quickly as possible.

We Americans are notoriously independent souls. We don’t like to be told what to do. Some among us even insist that the government should stay out of our business as much as possible. We can be quite vocal and sometimes even a bit brash when it comes to our ideas about how things should be done, but more than anything we tend to think that we can conquer almost any challenge better than most. We got to the moon, didn’t we? Surely we’ve got the best of everything in the world! We don’t think of it as boasting because it seems to just be the truth.

Suddenly the whole world is turned upside down by a virus that is new and strange. We’re not completely sure what it will ultimately do or how we will put it down. Our instinct is to ignore it as long as it doesn’t come near us. We’ve been saved by those two big oceans that have protected us from wars and left us relatively unscathed by rumblings in other parts of the world for most of history until terrorists found a way to bring fear into our midst. Now we hear warnings that the current threat will not be intimidated by our advanced technology, or national wealth, or borders. It does not respect our traditions or our freedoms. It does not see us any differently than it does the citizens of Wuhan or Padua or Kirkland, Washington. To it our bodies are all just targets for destruction, some more vulnerable than others, but all capable of carrying the deadly disease deeper into our midst.

Leaders across the globe are making decisions without any guarantees. They may as well be blind because there is no certainty as to what will actually work to halt this novel virus. We cannot compare it to the flu or measles or any other known disease because we have no scientific basis of doing so. We have yet to learn all of its mysteries and capabilities. We only have numbers of the sick and dead and the anecdotal stories of those on the front line of the battle against it to guide us.

Covid 19 seems to affect the elderly in more dangerous ways, as well as those who have other health issues. Children and young adults seem to generally have milder cases, but they are not automatically immune to the more critical symptoms and everyone who becomes infected is a carrier. Nations that have insisted on enforcing social distancing protocols early on have generally done better than those that waited until the toll of sickness rose to unbearable numbers. At this very moment there are countries whose healthcare systems have been overwhelmed and the end to their trials does not yet seem in sight. They send furtive warnings to the rest of us to take cautionary measures before it is too late.

This virus is not just a seasonal flu that is being overblown. It is not a hoax. It is not the fault of China or Democrats or President Trump. How we handle it will surely define us in history. We can rise to the occasion and do whatever is needed to end the contagion as quickly as possible or we can whine about inconveniences that we do not normally have. We can demonstrate our concern for all people everywhere by doing our utmost to cooperate with the efforts to contain the virus or we can demonstrate a false bravado by ignoring the requests that we stay home as much as possible.

The NBA season is done for now. Tom Hanks and his wife Rita are among those who have the virus. The world seems to be spinning out of control, to have suddenly gone insane. It will be up to everyone of us to restore calm and reason by following directives and doing our individual best to comply with each request for temporary changes in our behavior. This is a time for prayer, not just for those who are ill but for those who might become that way as well as for the medical personnel across the globe who are or will be fighting this demon virus. This is the time for unity and mending of the divisions that have produced so much rancor in recent times. This is the time for understanding, compassion and flexibility. This is the time to remind the people in our lives how much we love them.

If all goes well most of us will never be personally affected by the horrors of this virus. Hopefully when all is said and done we will actually be able to wonder if it was all much ado about nothing or if we did indeed prevent a more horrific scenario by doing whatever was needed at each juncture of the battle. We can only hope that by this time next year we will have dodged a bullet but for now it is  time to arm ourselves with calm and the good sense to do what is asked of us. Nobody is immune from the consequences if we presume to know more than the good souls who are attempting to protect us. Take care. Keep in touch with one another. We are a strong species that has faced down danger before. We can do it but it will take the combined efforts of everyone!    

The Ultimate Reward

Published on by Sharron BurnettLeave a comment

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My doctors always ask for an updated family medical history. Mine demonstrates a rather promising line of longevity. The youngest age at which any of my ancestors died of natural causes is eighty two, my paternal grandmother who had colon cancer. She used to always say that everyone in her family died from gut trouble so I suppose that to some extent her fate was almost inevitable. She ignored her own symptoms when they first arose. She was too busy working on her farm to worry about what she saw as trivialities. By the time things got worse she had waited too long to be saved. The doctors tried a few things but ultimately sent her home to die. There was no Medicare back then so her end wiped out my grandfather financially but his only complaint about that was that he had lost his “buddy.”

My mom lasted until the age of eighty four. She had lung cancer no doubt brought on by smoking which she unwittingly did until she was forty. Everyone enjoyed the habit when she was young. It would be decades before smoking was linked to so many diseases. By then the damage to her lungs was already done. Like my grandmother, Mama mostly ignored her symptoms until they became pronounced. Early detection and treatment might have allowed her to reach her mid nineties like her sisters but she had an aversion to doctors and tended to avoid them as much as possible.

My maternal grandmother lived until she was eighty eight years old. She never left her home aside from an occasion when her appendix burst and she had to be rushed to the hospital by ambulance. She recovered from that scare with no problem and lived quietly and happily without ever stepping a foot from her property. Without regular medical care it was inevitable that something would overtake her as she aged otherwise I suspect that she may have lived as long as the three of her daughters who made it past ninety.

My paternal grandfather made it well past one hundred before things began to fall apart. We became so accustomed to his constant presence that it was shocking when he actually died. He had seemed to be somehow immortal as each year passed leaving him as spry as he had always been.

Since I’ve had problems with my gastric system for many years I suspect that my paternal grandmother’s prediction that gut trouble will one day take me down is fairly accurate. I’ve regularly visited a gastroenterologist since I was in my forties so I’ve managed to control any problems and keep them rather minor. Barring accidents or the unexpected I may actually follow in the footsteps of my grandfather and my mother’s three sisters. That means that I have a good shot at being around for another twenty five or thirty years.

It boggles my mind to think in those terms. I realize that my grandchildren will be middle aged if I make it that long and my daughters will be numbered among the elderly. I worry a bit about my potential for being a burden on them. They are quite loving and would be appalled to think that I have such concerns but I know full well how difficult it can be to care for an aging parent who can no longer live independently. It becomes a tremendously demanding task financially, physically and emotionally.

I am in awe of individuals who care for an elderly parent. I’ve watched friends and cousins devote untold hours to the task. They rarely complain but I witness how tired and stressful the job is for them. A lingering illness in a loved one takes its toll on everyone. I find that nobody wants to do that to their children but sometimes they outlast even their sons and daughters just as my grandfather did. Extreme old age can be lonely.

Life is uncertain. None of us know when our time here will end. I’d like to think that when I finally reach those final days that I will be as courageous and undemanding as my mother and grandmothers were. All three of them made us feel that they were comfortable with the thought of leaving this earth just as God had planned it for them. They gave us a beautiful gift of calm and certainty that they were ready. Somehow their deaths became celebrations of their lives.

I have been a somewhat competitive person for most of my life. I must admit that I do like to win and be noticed and honored. I’ve received a few awards here and there. I find that the joy in receiving them is somewhat fleeting. Life is a series of challenges and if the focus is always on excelling beyond others, it can become tiresome and meaningless. In the end the great joy of living is found in fulfilling a purpose, no matter how humble that may be. It is about loving and doing for others and using the talents that each of us have to one extent or another.

In spite of what Yoda advises there is greatness in trying. If every person tried to be the best versions of themselves our world would be even more wonderful than it already is. We make a mark on this earth not through fame or fortune or achievement but by the manner in which we treat the people who come our way. Each of us will be remembered by individuals whose hearts we have touched. There is no better reward than that.

The Power of Truth

Published on by Sharron BurnettLeave a comment

lies

I was nineteen years old the first time my mother had a mental breakdown that rendered her unable to cope with the demands of caring for herself or my brothers. She took to her bed filled with paranoid anxieties, not even willing to run her air conditioner in the heat of July in Houston, Texas lest some intrigues find a way into her home. She drew her drapes and sat in the darkness imagining dire scenarios. Her fears became more and more frightening as I visited her each day hoping against all hope that she might experience a spontaneous recovery and become her old self once again. As her situation became more and more uncertain I understood that I would have to take charge of finding care for her, even though I still thought of myself as an insecure child.

My father had been dead for eleven years by then and the other adults in my life were as confounded by my mother’s sudden turn into depression and then mania as I was. Help was difficult to find. Not even the pastor of our church was willing to offer counsel as he admitted that he had a difficult time dealing with such situations. I felt abandoned in my hour of need and forced to rely on my own wits and the wisdom and kindness of strangers.

Our long time family physician advised me to find psychiatric care for my mother, an almost unheard of route in 1969. Mental illness was still a topic confined to whispers behind closed doors which was no doubt the reason why none of my elders felt comfortable discussing my mother’s sudden downward turn. I groped in the dark hoping that I would do the right thing for my mother. I found a doctor with a seemingly good reputation and crossed my fingers.

Few things went we’ll during that first battle to restore my mother’s mental health. The doctor was patronizing toward me, treating me like an ignorant child and revealing little about my mom’s prognosis as she appeared to be getting better with each passing day. I had to simply accept that our family was on the right path and that my mother would soon be her amazing self again. When I heard the words,”Your mother is cured.” I eagerly believed them and went about the business of living a routine life once again.

I kept the secret of my mother’s illness closed up in my heart. Few people who knew me, including members of my extended family, knew of her illness and I was more than happy to keep it that way. Mental illness was a conversation killer and something that felt somehow shameful as though it indicated a weakness in our family that must never  be mentioned by any of us. I clung to the hope that my mama’s mind would never again be as diseased as it had been during that horrific time even as I saw signs that she was somehow different from the tower of strength who had guided me into my adult years.

Within a year or two it became apparent that my mother was descending into madness once again. By that time my own confidence had grown and I did a great deal of research before finding her a doctor who was more open and sympathetic to her needs. It was a blow to have to begin anew but things turned out well once again. In spite of the recurrence of her illness I continued to rather naively tell myself that she would somehow beat this monster that invaded her thoughts and behavior while I also continued to hide the reality of our family’s struggles from all of my friends and coworkers.

Such was the continuing routine year after after. My mother would cycle in and out of psychotic moments and I would get her the medical interventions that she required then we would both act as though nothing was essentially wrong. Relapse after relapse occurred until we both became quite good at seemingly hiding our secret. I pretended as much as my mother did that all was well until it wasn’t.

During a particularly devastating occurrence of yet another breakdown of my mother’s mind I found myself desperately needing to share the burden of caring for her. For the first time I spoke openly to colleagues at work and discussed the toll that being her caretaker had imposed on me. I felt utterly selfish for admitting that I was exhausted. I thought of myself as an utter failure and a fraud. It was only in my moment of honesty that I found the comfort that I had needed for so long. I also became better at helping my mother. By allowing the light of day to illuminate the problem everything became easier. I learned that I was not alone in my concerns and sorrows and that people were far more understanding than I had been willing to believe.

I found a great doctor for my mom who finally provided me with the frankness that I needed to hear. He had a diagnosis for her recurring bouts of depression and mania, bipolar disorder. He explained to both me and my mother that her illness was chronic but with regular care it need not be as debilitating as it had been. He forced us to face all of the demons that had haunted us and to accept that mental illness need not be hidden from view anymore than one might pretend that a heart attack was something about which to be ashamed. He provided us with an epiphany that free us from the self imposed prison that we had build around our worries.

From that point forward I became a vocal advocate for those with mental illness and their families. I felt compelled to speak about the journey that our family had travelled and to share the struggles that had threatened to break us. While there were still those who shied away from my openness most people embraced my honesty and supported my family as we continued to deal with my mother’s lifelong illness.

Mental illness is a disease just as surely as diabetes is. There are treatments for such conditions that help individuals to lead better lives. The more we discuss mental heath the more likely it will be that those afflicted with disorders will find hope and perhaps even a bonafide cure one day. I learned that we must have conversations about such things. It is the only way to erase the stigmas that make such illnesses somehow seem unmentionable. I no longer lie to myself or anyone else. My mother was a remarkable woman who also happened to have bipolar disorder. She was so much more than her illness. 

Finding Beauty In Life and Death

Published on by Sharron BurnettLeave a comment
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Photo by Cindy Gustafson on Pexels.com

I’ve seen more than my share of death. As the calendar moves relentlessly forward I have had to watch the passing of my elders, the people who loved and guided me when I was a child. Of late I have seen far too many of my peers leaving this earth as well. Death is inevitable and yet still such a frightening and unwanted state for most of us. We cling tenaciously to life even as we understand that not one of us is immortal.

A friend posted an article that defined the ways in which one might experience a “good” death. It was filled with all sorts of ideas that might work if one has the luxury of knowing that the end is near because of an illness that points in that direction. For many death is more sudden and unexpected, making it impossible to take charge of the event as described in the article.

My mother always spoke of being ready to die at any moment. She did not broach this topic in a morose manner, but rather from the standpoint of living life in such a way that no matter what might happen she would be ready whenever her time on earth was over. She did this with several routines from which she rarely diverged and from open discussions about her preferences long before there were any signs that her death was drawing near. As a result her passing was beautiful, and done on her terms just as she had always wished.

Mama never let a single day end in anger or hurtfulness. She asked for forgiveness for her transgressions which were always of the very minor variety anyway. She communicated her love for the people that she knew daily. There was no need at the end of her life for her to make an act of contrition to either God or family members. We already knew as I’m sure God did as well that she was sorry for anything that she had done that hurt anybody.

My mother expressed her desires to refuse all artificial means of prolonging her life on many occasions. She only hoped to be as free of pain as possible, but beyond that she insisted that we not take any extraordinary measures. We therefore felt comfortable conveying her wishes to her doctors who all smiled in agreement with her wisdom.

Mama lived a faith filled life that never wavered. She believed with all of her heart that our earthly home is only temporary and imperfect. She looked forward to an eternity of peace and happiness with God. On her last day of life she had an angelic glow and a beatific smile as she motioned toward heaven whenever we asked how she was feeling. She believed that her reward for a life well lived was coming soon. She had no anxiety and her peacefulness spread to each of us who visited with her in those final hours.

One by one the people who had meant the most to her came to pay their last respects. She made each visitor feel her love as she held hands and did her best to help them to accept the inevitable. She orchestrated final moments that none of us would ever forget, and gave us a gift of peacefulness that is unimaginable. In fact, even the nurses who cared for her in the ICU felt the joyousness that she projected. One of them cried as she left her shift, telling me and my brothers that she had never witnessed such a blessed ending to a life. She understood as we did that my mother had chosen this way of spending her final hours by living her entire life in preparation for the end.

My mother was always a caretaker who sacrificed for the needs of others. She asked for very little for herself and she certainly had moments when she was filled with all of the human frailties that we have. Somehow she always found her way back to a kind of inner peace and a total dependence on God to comfort her. She never asked Him for things or even to take away her sorrows or pain. All she wanted from Him was a bit of help in managing her attitude toward whatever was happening. Sometimes it took awhile, but always she found the serenity that she sought.

Mama’s life was difficult from beginning to end and yet she was one of the happiest people that I have ever known. From the time that I was a child she explained her joy by reasoning that she was able to tackle any challenge because she always knew that God was not going to leave her to act alone. Even, and perhaps most especially, in death she had a certainty that He was with her and that the best was coming. She was never angry with Him for the difficulties that mounted at her door. She accepted her travails as being a part of life.

I understand that it is difficult for many of us to curtail our anger, resentments, suffering and sorrow. Life can appear to be very cruel and death is often prolonged and painful. Keeping the faith and finding a way to smile even under the worst of circumstances can seem impossible, and yet I saw firsthand the power and beauty of my mother’s unwavering determination to be in charge of her life and her death by choosing an attitude of trust, faith, hope, and joy. She showed me and those who knew her how to have a beautiful death. I only hope that I will be able to follow her lead whenever that day comes for me.