I have had two passionate causes in my life. One was made by my own choice. The other was forced upon me by circumstance. Both of them have been major forces that weaved through every single day of my adulthood and seemingly defined my purpose here on this earth. One is a popular political football of sorts, often discussed but rarely resolved. The other is almost taboo, the sort of topic carefully whispered about, and almost always entirely misunderstood. Of course I am speaking of both the education of our young people and the almost haphazard way in which we deal with those among us who are mentally ill.
Those who know me well and those who read my posts understand that I have devoted myself to helping students and their teachers to find quality classrooms and educational standards that include learning how to think critically and how to lead meaningful lives. While there are still great problems with schools and universities that include both methodologies and financial considerations, I am far from alone is voicing both my concerns and my ideas for approaching them. Teachers, professors, parents, and the students themselves are quite vocal about their expectations for preparing each generation for the future. As such education is a subject that quite often finds its way into political discourse. There is much debate over financing and structuring of our public school system, and such discussions while slow to cause actual changes still manage to keep a modicum of attention on one of the most important issues in our country.
On the other hand, mental illness and how we deal with it is a kind of orphan. It is one of those exceedingly uncomfortable subjects that make us squirm even at the mere mention. Furthermore it is maddeningly misunderstood by those who have been fortunate enough not to experience its crushing effects. It is a disease with physical origins that are not as easy to see as a case of diabetes or a heart attack. The science around it is still in its infancy compared to other medical issues. There are few massive institutions like the M.D. Anderson Cancer Center that are dedicated to unlocking the secrets to combating mental illness. The funding for those who choose to enter the world of psychology or psychiatry is generally well below that of other medical fields, and, speaking of fields, we never see athletes donning a color to promote support and awareness of those individuals and their family members who fight relentlessly and alone to care for loved ones ravaged by mental illness. It is all too easy to believe that nobody is particularly concerned about those who endure diseases like chronic depression, bipolar disorder, anxiety and other forms of mind numbing illness. Instead we look away from those that we all too often blithely categorize as “crazy.” In fact, I am certain that I lost many of my potential readers in the first paragraph of this blog as soon as I mentioned mental illness.
I have not secreted the fact that my dear mother had bipolar disorder nor that me and my brothers became her lifelong caretakers in an odyssey that lasted from 1969 until her death in 2011. It was often a frustrating journey punctuated by a seeming lack of concern by a society that all too many times shunned our mother when she was most in need of support. A lack of doctors, hospitals, finances and most of all understanding complicated our search for a kind and compassionate resolution to her needs and ours. Along the way we encountered dedicated professionals who were as troubled as we were like Dr. Thomas Brandon and Dr. Jary Lesser, but we also found many who had been so chewed up alive by the laws and the lack of funding that they had become far too cynical to be of help. We learned who the people were that we could trust, and realized that their numbers were far fewer than we had hoped.
On this past Sunday I received a text from my youngest daughter insisting that I watch a documentary on Netflix called, God Knows Where I Am. Without revealing any spoilers she simply said that it was sad but quite good, so I decided to end what had been a glorious day spent with my grandsons by viewing the film. I soon learned that it was the story of a woman who was found dead inside a vacant farmhouse, seemingly the victim of starvation. Amazingly she had filled several spiral notebooks with daily descriptions of her strange saga including a final declaration that included her name, Social Security number, and designation of where she wished to be buried. What investigators ultimately found is that the victim, Linda Bishop, was from a middle class family that had been filled with love and delightful experiences. Linda was well educated and possessed a personality that garnered her many friends. She married, had a daughter whom she adored, and eventually divorced. The rest of the tale devolves into a brutally heartbreaking saga of her crushing fall into mental illness and the ways in which our current system of dealing with cases such as hers totally failed both Linda and her family.
As I watched the film I found myself feeling as though it was my own mother’s story and that of me and my brothers. I was able to relate to every segment of the unfolding tragedy. My stomach clinched into the old familiar knot that often plagued me whenever my mom was particularly sick. I have been to all of the same dark places that Linda Bishop’s loved ones have been. I know from my own experiences how much truth lies in this documentary, and I hope beyond hope that enough people will watch it and embrace it so that a kind of revolution will begin aimed at fixing a very broken system that too often leaves everyone concerned in a state of abject fear and dejection.
My brothers and I were lucky enough to keep my mother from the kind of harm that overcame Linda Bishop, but it was a battle that we waged virtually every single day, and mostly alone. It was a fight not just for her life but our own. I know that we made many mistakes, but ultimately we slew the dragon of ignorance and lack of concern that made every step of the way more difficult that it need have been. I will speak out for those who have mental illnesses and for their families until I draw my last breath. I will never quite understand why it is not yet one of the most important causes in our world, but I will not let the lack of interest stand in my way of bringing awareness. For now I simply implore everyone to watch God Knows Where I Am. Surely it will tear at your heart.